Tuesday, October 23, 2018

Practicing Mindfulness & Embracing Yourself


When you are diagnosed with cancer I think most of us think about the past and how we have missed out on things by not being “present” and “In the moment”. Sometimes life just gets so busy or crazy and you get into auto pilot mode and just push through. It’s kind of like that 1st year of your child’s life that goes by so fast it’s a blur and you thank God for all the photo’s you took so you can look back and remember. But you forget how all the baby snuggles felt or how tired you were during wakeful nights of teething or tummy aches. Those moments just go by so quickly and life really moves fast. Remember being young and just wishing the time away so that you could be older, get your drivers license, date someone, drink with friends, party, go to college, graduate, go to clubs, get married, have kids, land that awesome job. The list gets longer and longer, in no particular order. And then all those moments happen and you forget the details and you take a pause and its 30+ years later. Where did life go? I think I barrel rolled through life and have now stopped at the ripe old age of 37 saying holy shit where has time gone and oh by the way, I have cancer. Not to mention I no longer have a career in my field of profession. With cancer life is like a double sided sword. You want to remember all those moments of the past, be present in the NOW and experience all the moments of the future before Cancer takes your life and you can no longer experience the “moments”. This is the struggle!

On occasion I attend a stage 4 breast cancer support group meeting for young survivors. I don’t go every month but try to go when I can. At one of the meetings the topic was meditation and they were giving out a book called “being well (even when you are sick) mindfulness practices for people with cancer and other serious illnesses by Elana Rosenbaum. I had already read about how beneficial meditation could be for stress and anxiety and I had down loaded the “Head Space” free app on my phone so I knew the very basics. This book had me hooked and I continued to read other books by Elana Rosenbaum and Jon Kabat-Zinn about mindfulness and meditation. Amazing writers who really explain the interworking’s of meditation from starting, staying the course and making it apart of your everyday. Back ground on me and books….. I highlight, underline, turn down pages, write in the margins and pretty much take over the written page when something really resonates with me.

Some of my favorite quotes from Being well by Elana:

“Mindfulness creates harmony and brings joy – if we also allow ourselves to experience sadness”

‘My motto became “Yes to life and all that’s in it.” – YES to embracing life for sure!!

“To remain balances, we’re constantly adjusting our position, shifting gears, and altering your pace and speed.”

Each time you catch yourself flying into the arms of fear and are willing to examine it, respect its power, and breathe with it, you are letting it move around you like molecules of air”.

“Our task in being mindful is to create a foundation that is stable and calm, so our dream is reality experienced every day and throughout the day, moment by moment.”

“Each breath that we feel and follow as it enters and leaves the body is a reminder of our aliveness and the preciousness of each moment.”

“Change can happen in a flash, but acceptance is a process”.

“How often do we worry about a future that may never happen instead of the ground beneath our feet?”

“On a moment-to-moment basis, reality is manageable; staying in my head and imagining what could happen is not”.

Just like all things in life, it’s hard to make new habits that last. Taking 10 minutes out of your day to sit quietly with your thoughts with no judgement isn’t easy. I always thought meditation was to be quiet and control your thoughts. This is totally wrong and of course hard if not totally impossible to actually do. Your thoughts are your thoughts, they come and they go. Maybe they even linger. Your past is your past, it happened and it’s over. We all have issues and things that have happened in our past that lay on us. Unresolved issues with others, family traumas, life’s disappointments/failures, maybe fear of cancer or illness….. you name it. We ALL have them!

I really love the time and space I make to sit and be quite. I personally prefer guided meditations so my thoughts can be pulled back when they start to stray. I have found a great deal of peace in breathing and listening to my breath. I often feel the need to take deep and cleansing breaths during all kinds of situations and moments. Kind of like a re-set, I got this, focusing on the now not the later, slow down and just breathing. I found that just being mindful of breathing has been an amazing discovery. I actually held my breath until I had to take a breath. I am not sure if this is normal for everyone, but I feel like I never breathed correctly before.

My anxiety can be off the hook. Fear is the most debilitating feeling in your life. I come from a family where anxiety is a real issue, especially social anxiety. I think I evolved to just push through and push those feelings of anxiety down deep inside. I never learned to cope or deal with stress and anxiety in a healthy way. I always just pushed through the feelings and ignored them. Most people see me as outgoing, energetic (sometimes hyper), talkative and happy. The hyper part definitely was true (not sure I have much hype these days) and the happiness!! I have truly been a happy and positive person throughout most of my adult life, aside from a handful of personal experiences where I was truly unhappy with how things were going or the way they were turning out (at least I think I have been happy ;o) I embrace change and I LOVE to love people and pass out HUGs!!!! Don’t get me wrong, I am for sure not “happy” all the time, just ask Steve. My smile can be deceiving sometimes and I smile a lot. This in all honesty is part of my problem. To quote my girl tribe and at times my Oncologist have said something to the effect of, “its ok to not be ok, and it’s ok to be selfish and think about yourself and complain if you need too”. I totally say that I am “ok” more often then I should. Can you be a “happy” person who makes friends, has a fun time, but at the same time has anxiety??? Absofreekinglutly you can. It all comes down to how you handle the pressure, and if you let it control what you do. I never let it stop me from having a fun time or meeting new people. I just didn’t address it at all. I do not recommend you do this if you have anxiety. Deal with it now, don’t wait till it overtakes you 30 some years later.

Somehow I survived 2012 and 2013 without major anxiety melt downs. I remember my Oncologist offering to give me medication but I kept saying No and that I was ok. Again, I think I just pushed through the same way I did in all the years prior. I focused on that light at the end of the tunnel that was the end of treatment. However, I no longer have the capacity in my body to push it down anymore. Nor do I have a “light” that signifies end in treatment. My anxiety now will come out of no wear, and when it does it is dark and debilitating. It’s almost like a silent, crushing panic attach. It is normally not situational or social. Then the tears come and for someone who always pushes down their emotions it’s hard to deal with that part of myself also. Endless scans which have historically not been super positive and on-going chemo days naturally cause some anxiety. I think I manage those times ok, although maybe I am pushing that down and do not come to terms with the “feels” like I should. This may in turn create these out of the blue “episodes” I get. But, the time has COME for me to deal with it and that is where meditation has saved me to a certain extent (caveat…..when I am consistent).

When I started meditating past experiences surfaced which is totally normal. But you come face to face with yourself and begin to see how things were in the past, how they are now and how much better they could be in the future. It takes time and patience to see the benefits. You have to make time for it and really “practice it” to get into the right place. And eventually you get to a place of peace. You learn techniques to calm the crazy. And honestly sometimes it’s just a deep set of breaths that bring you back to the now when your mind is racing.

This turned into way more then I intended. Today is a chemo day and I went solo (without a chemo buddy) so I had a lot of time to go off on this tangent. All I really wanted to say is, regardless of what you are going through in life, meditation; breathing and being mindful can have an amazing positive influence in your life. I know I come from this extreme cancer side of life and so many of the books I have read deal with cancer or major illnesses. But, meditation is not only for those who have to deal with cancer. Meditation is a gift we are all capable of that sits patiently inside of each and every one of us. You may be experiencing a loss; loss of a friend, family member, child. Maybe you are going through a major life change or dealing with a family crisis. Meditation can help with so many aspects of your life.

I honestly wrote this to get myself back on track and inspire myself to continue the journey and get back to those quite (although not always mind quite) times each day. I hope you feel inspired to pick up a book about meditation, down load the “headspace” app, or just start sitting with eyes closed, breathing deep and even for 5 min. Take the leap into a new space that may help you deal with all kinds of issues and situations. If you take anything away from this post please give meditation a try. It can truly be an amazing journey and I guarantee your perception of meditation/mindfulness is far from the actual truth.

Don’t forget, “Shine Brightly, Live Happily & Smile!” 


  Today after chemo & school - Soaking up some warm sunshine! 


Tuesday, October 9, 2018

My Breast Cancer Awareness


So it’s October again and breast cancer awareness month. The month with all the pink ribbons everywhere and all the fundraising for breast cancer everything. There is so much “awareness” out there in the community, in the news and on the internet about breast cancer. But many of us struggle with how that awareness correlates into our lives and the lives of our family. I certainly didn’t make the connection in my own life/family. Ask yourself some questions when you see the pink ribbon: “what does this mean for me”? “Do I have a family history of breast cancer”? “Does the BRCA1 or BRCA2 gene run in my family on either side”? These genes on your Dad’s side are just as important as on your Mom’s side. “Do I do self-breast exams regularly”? “How many people do I know who have had breast cancer”? “Am I being as proactive as I can be”? Early detection does NOT mean survival will be better or make outcomes more positive. As a stage 2 (considered early stage) survivor in 2012, I am now fighting stage 4 metastatic cancer starting in 2017. Although early detection is considered “better” it’s not a win for all patients. What if we could prevent cancer?  Is our focus on a cure really effective at this point in the fight against breast cancer?

One of my favorite quote: “awareness doesn’t do a dam thing without inspiration”. Pretty much every cancer or illness has a dedicated day or month where we talk about it, raise money for and support. What do we do with all the awareness that is out there about all the statistics for cancer, diabetes and other illnesses? We need the inspiration to turn awareness (aka the pink ribbon) into action. That should be the goal of “awareness month”, getting beyond the awareness, the ribbons, and the colors. Turning all that awareness into action with sustainable healthy choices you get excited about.  Change comes in different shapes and sizes. Make the connections between the awareness and how it relates to you, your family and your friends.

Cancer changes everything, it changes your perspectives and priorities, many times in a better more aware direction. But there are a lot of negative aspects of dealing with cancer for both the patient/survivor as well as the family and friends. Lots of things change, and it’s hard on the relationships all around you. Watching someone go through cancer is often times harder than dealing with it yourself as a patient.  So many of you reading this have been touched by cancer in some way, shape, or form.  The time has come to shift “awareness” into actions that support prevention and not a cure. Imagine a world where cancer (breast cancer and others) could be prevented.  To quote my good friend Jill, the traditional treatment for breast cancer is to cut, burn and poison (surgery, radiation and chemo). Survivors choose one of these options, all of them or non of them. But what if we didn’t have to make this choice?  What if there was something we could do differently. It could be a medicine, supplement, blood test, diet ect. that directly relates to a specific type of cancer prevention. The possibilities are out there for prevention but we all need to shift the focus together. I truly believe that prevent should be the focus and that we need a shift in thinking in how to treat cancer and those at high risk. Preventing is the key!  I also believe that if we know how to prevent cancer from growing it will lead to a cure because we will understand better how cancer works and why it is different for each person. Everyone’s cancer is different and right now we put cancer patients in different boxes and treat everyone in the box the same way, despite genetics, lifestyle and predispositions.  Think about your loved ones who have been affected by cancer. Think about your children and grandchildren. I think we would all agree we would do anything in our power to protect them from ever dealing with a cancer diagnosis at any age! One of my main motivations for prevention is my daughter, my nieces and nephews and my friends children. The history of breast cancer in my family is strong. And to have any of our children (between all of us six siblings we have 15 children, 9 are girls) have to deal with this at any age is heart breaking. I want there to be better options for them. They should not have to deal with surgery as a way to prevent breast cancer (mastectomy & oophorectomy plus hormone blocking meds). How is this the only option right now for girls who are at high risk and want to prevent (not detect early). Early detection just makes you a cancer survivor who has to make the choice to cut, burn or poison. 

We need to do better! We need to do more! Be thoughtful with your support during breast cancer awareness month. Ask questions and make sure you are supporting a cause you know to be helping patients and survivors.

Xo – Erin